Sleep measures over time by caregiver's relationship to patient and adjusted for caregiver age, mean (95% CI), N=16
| Sleep measure | Partners n=10 | Other family n=6 | Statistics (with p<0.10) |
|---|---|---|---|
| Self-reported sleep quality | |||
| PSQI total score | p=0.040*, η2=0.29 | ||
| In hospice | 7.18 (4.70 to 9.65) | 5.54 (2.14 to 8.94) | |
| 6-month follow-up | 7.45 (5.08 to 9.81) | 3.09 (−0.16 to 6.34) | |
| 12-month follow-up | 7.69 (6.24 to 9.14) | 3.02 (1.03 to 5.01) | |
| Actigraph measures | |||
| Sleep disruption | |||
| WASO, min | p=0.002†, η2=0.37 | ||
| In hospice | 70 (12 to 128) | 165 (85 to 244) | |
| 6-month follow-up | 116 (86 to 147) | 38 (−4 to 80) | |
| 12-month follow-up | 102 (60 to 144) | 67 (9 to 124) | |
| WASO, % | p=0.007†, η2=0.32 | ||
| In hospice | 12.0 (4.1 to 20.0) | 24.5 (13.6 to 35.4) | |
| 6-month follow-up | 19.1 (14.5 to 23.6) | 7.9 (1.7 to 14.1) | |
| 12-month follow-up | 17.5 (10.0 to 25.0) | 11.8 (1.5 to 22.1) | |
| Night awakenings, n | p=0.067†, η2=0.19 | ||
| In hospice | 7.1 (3.56 to 10.6) | 7.2 (2.4 to 12.1) | |
| 6-month follow-up | 10.8 (6.8 to 14.7) | 6.0 (0.6 to 11.3) | |
| 12-month follow-up | 10.3 (6.5 to 14.1) | 6.0 (0.7 to 11.3) | |
| Sleep quantity | |||
| Total sleep in 24 h, h | – | ||
| In hospice | 8.34 (7.44 to 9.25) | 8.24 (7.00 to 9.48) | |
| 6-month follow-up | 8.49 (7.64 to 9.34) | 7.61 (6.44 to 8.78) | |
| 12-month follow-up | 8.89 (7.75 to 10.0) | 8.12 (6.55 to 9.69) | |
| Total night sleep, h | – | ||
| In hospice | 7.80 (7.04 to 8.57) | 7.61(6.56 to 8.66) | |
| 6-month follow-up | 7.87 (7.30 to 8.44) | 7.26 (6.48 to 8.05) | |
| 12-month follow-up | 7.83 (7.05 to 8.61) | 7.68 (6.61 to 8.75) | |
| Total day sleep, min | – | ||
| In hospice | 31.3 (8.0 to 54.7) | 36.4 (4.4 to 68.5) | |
| 6-month follow-up | 37.2 (15.5 to 58.9) | 20.4 (−9.5 to 50.2) | |
| 12-month follow-up | 63.8 (31.9 to 95.8) | 23.8 (−20.1 to 67.7) | |
The PSQI assessed sleep during past month, while actigraphy measures assessed average sleep over 4 nights and 3 days.
*Main effect for group (partner vs other family).
†Interaction effect for group by time.
PSQI, Pittsburgh Sleep Quality Index; WASO, wake after sleep onset, a measure of sleep disruption.