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Primary care interventions and current service innovations in modifying long-term outcomes after stroke: a protocol for a scoping review
  1. Dominika M Pindus1,
  2. Lisa Lim1,
  3. A Viona Rundell1,
  4. Victoria Hobbs1,
  5. Noorazah Abd Aziz1,2,
  6. Ricky Mullis1,
  7. Jonathan Mant1
  1. 1Department of Public Health and Primary Care, University of Cambridge, Strangeways Research Laboratory, Cambridge, UK
  2. 2Department of Family Medicine, National University of Malaysia, Bandar Tun Razak Cheras, Kuala Lumpur, Malaysia
  1. Correspondence to Dr Dominika M Pindus; D.M.Pindus{at}


Introduction Interventions delivered by primary and/or community care have the potential to reach the majority of stroke survivors and carers and offer ongoing support. However, an integrative account emerging from the reviews of interventions addressing specific long-term outcomes after stroke is lacking. The aims of the proposed scoping review are to provide an overview of: (1) primary care and community healthcare interventions by generalist healthcare professionals to stroke survivors and/or their informal carers to address long-term outcomes after stroke, (2) the scope and characteristics of interventions which were successful in addressing long-term outcomes, and (3) developments in current clinical practice.

Methods and analysis Studies that focused on adult community dwelling stroke survivors and informal carers were included. Academic electronic databases will be searched to identify reviews of randomised controlled trials (RCTs) and controlled trials, trials from the past 5 years; reviews of observational studies. Practice exemplars from grey literature will be identified through advanced Google search. Reports, guidelines and other documents of major health organisations, clinical professional bodies, and stroke charities in the UK and internationally will be included. Two reviewers will independently screen titles, abstracts and full texts for inclusion of published literature. One reviewer will screen search results from the grey literature and identify relevant documents for inclusion. Data synthesis will include analysis of the number, type of studies, year and country of publication, a summary of intervention components/service or practice, outcomes addressed, main results (an indicator of effectiveness) and a description of included interventions.

Ethics and dissemination The review will help identify components of care and care pathways for primary care services for stroke. By comparing the results with stroke survivors' and carers' needs identified in the literature, the review will highlight potential gaps in research and practice relevant to long-term care after stroke.

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  • Contributors DMP drafted the protocol and designed the search strategy and data extraction sheets. JM and RM conceived the research question. All the coauthors critically reviewed the protocol. NAA, LL and RM critically reviewed the search strategy and inclusion criteria. Finally, LL, AVR and RM critically reviewed the data extraction sheets. DMP is a guarantor for this work.

  • Funding The work on the protocol is the part of the programme of research ‘Developing primary care services for stroke survivors’ funded by the National Institute for Health Research (NIHR)'s Programme Grants for Applied Research Programme (grant reference number PTC-RP-PG-0213-20001).

  • Disclaimer The funder had no involvement in developing the protocol but approved the final submission. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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