Article Text

This article has a correction. Please see:

Download PDFPDF

Bereaved parents’ experience of stillbirth in UK hospitals: a qualitative interview study
  1. Soo Downe1,
  2. Ellie Schmidt2,
  3. Carol Kingdon1,
  4. Alexander E P Heazell2
  1. 1Research in Childbirth and Health (ReaCH) Group, University of Central Lancashire, Preston, UK
  2. 2Maternal and Fetal Health Research Centre, St Mary's Hospital, Manchester, UK
  1. Correspondence to Professor Soo Downe; sdowne{at}uclan.ac.uk

Abstract

Objective To obtain the views of bereaved parents about their interactions with healthcare staff when their baby died just before or during labour.

Design Qualitative in-depth interview study, following an earlier national survey. All interviews took place during 2011, either face-to-face or on the telephone. Data analysis was informed by the constant comparative technique from grounded theory.

Setting Every National Health Service (NHS) region in the UK was represented.

Participants Bereaved parents who had completed an e-questionnaire, via the website of Sands (Stillbirth and Neonatal Death Society). Of the 304 survey respondents who gave provisional consent, 29 families were approached to take part, based on maximum variation sampling and data saturation.

Results 22 families (n=25) participated. Births took place between 2002 and 2010. Specific practices were identified that were particularly helpful to the parents. Respondents talked about their interactions with hospital staff as having profound effects on their capacity to cope, both during labour and in the longer term. The data generated three key themes: ‘enduring and multiple loss’: ‘making irretrievable moments precious’; and the ‘best care possible to the worst imaginable’. The overall synthesis of findings is encapsulated in the meta-theme ‘One chance to get it right.’ This pertains to the parents and family themselves, clinical and support staff who care for them directly, and the NHS organisations that indirectly provide the resources and governance procedures that may (or may not) foster a caring ethos.

Conclusions Positive memories and outcomes following stillbirth depend as much on genuinely caring staff attitudes and behaviours as on high-quality clinical procedures. All staff who encounter parents in this situation need to see each meeting as their one chance to get it right.

  • Delivery of Care
  • emotional reaction
  • Healthcare quality improvement
  • Qualitative Research
  • Obstetrics
  • Patient-centred care

This is an open-access article distributed under the terms of the Creative Commons Attribution Non-commercial License, which permits use, distribution, and reproduction in any medium, provided the original work is properly cited, the use is non commercial and is otherwise in compliance with the license. See: http://creativecommons.org/licenses/by-nc/3.0/ and http://creativecommons.org/licenses/by-nc/3.0/legalcode

Statistics from Altmetric.com

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.

Linked Articles

  • Correction
    British Medical Journal Publishing Group