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Reliability of hospital scores for the Cancer Patient Experience Survey: analysis of publicly reported patient survey data
  1. Gary A Abel1,
  2. Mayam Gomez-Cano1,
  3. Tra My Pham2,3,
  4. Georgios Lyratzopoulos4
  1. 1 University of Exeter Medical School, University of Exeter, Exeter, UK
  2. 2 Behavioural Science and Health, University College London, London, UK
  3. 3 Primary Care and Population Health, University College London, London, UK
  4. 4 Department of Epidemiology and Public Health, Health Behaviour Research Centre, University College London, London, UK
  1. Correspondence to Dr Gary A Abel; g.a.abel{at}exeter.ac.uk

Abstract

Objectives To assess the degree to which variations in publicly reported hospital scores arising from the English Cancer Patient Experience Survey (CPES) are subject to chance.

Design Secondary analysis of publically reported data.

Setting English National Health Service hospitals.

Participants 72 756 patients who were recently treated for cancer in one of 146 hospitals and responded to the 2016 English CPES.

Main outcome measures Spearman-Brown reliability of hospital scores on 51 evaluative questions regarding cancer care.

Results Hospitals varied in respondent sample size with a median hospital sample size of 419 responses (range 31–1972). There were some hospitals with generally highly reliable scores across most questions, whereas other hospitals had generally unreliable scores (the median reliability of question scores within individual hospitals varied between 0.11 and 0.86). Similarly, there were some questions with generally high reliability across most hospitals, whereas other questions had generally low reliability. Of the 7377 individual hospital scores publically reported (146 hospitals by 51 questions, minus 69 suppressed scores), only 34% reached a reliability of 0.7, the minimum generally considered to be useful. In order for 80% of the individual hospital scores to reach a reliability of 0.7, some hospitals would require a fourfold increase in number of respondents; although in a few other hospitals sample sizes could be reduced.

Conclusions The English Patient Experience Survey represents a globally unique source for understanding experience of a patient with cancer; but in its present form, it is not reliable for high stakes comparisons of the performance of different hospitals. Revised sampling strategies and survey questions could help increase the reliability of hospital scores, and thus make the survey fit for use in performance comparisons.

  • oncology
  • quality improvement
  • medical management
  • health service research
  • patients
  • health policy

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

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Footnotes

  • Contributors GAA and GL conceived and designed the study. GA developed the methodological framework. MGC performed the analysis. All authors (GAA, MGC, TMP and GL) contributed to the interpretation of findings and the drafting of the manuscript. GA is guarantor for this paper.

  • Funding This research was funded by Macmillan Cancer Support (grant number 5995414). GL is funded by a Cancer Research UK Advanced Clinician Scientist Fellowship award (grant number C18081/A18180). The work presented here represents that of the authors and does not necessarily represent those of the funding organisations.

  • Competing interests The authors report grants from MacMillan Cancer Support, during the conduct of the study. GA and GL have acted as academic consultants providing methodological advice to NHS England Insight team regarding the Cancer Patient Experience Survey.

  • Ethics approval This study is entirely based on publically available data and so ethical approval is not required. The actual survey was conducted by the survey providers after obtaining section 251 approval of the NHS Act 2006 and Health Service (Control of Patient Information) Regulations 2002.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement The study is based entirely on publicly reported data as referenced in the text.

  • Patient consent for publication Not required.